Welcome! Epidermolysis Bullosa - Through the Eyes of a Patient - Butterfly Children 

A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB patients, their families, friends and those just wanting to learn a little bit about the Butterfly Children! epidermolysis, bullosa, butterfly, children, eb, skin, disorder, disease, blistering, blister, blisters, wound, epidermis, dermis, recessive, dystrophic, rdeb, junctional, jeb, simplex, ebs, herlitz, keratin, dominant, ddeb, aquisita, acquisita, eba, hallopeau, siemens, weber, cockayne, downling, meara, koebner, inversa, hemidesmosomal, hedb, bullous, third, degree, burns, anchoring, fibrals, friction, condition, foods, recipes, pureed, disability, disabled, handicap, physically, challenged, sore, ulcer, fragile, birth, infancy, child, kid, baby, babies, infant, courteney, cox, debra, ebmrf, camp, discovery, wonder, natural, medicine, medical, research, gene, therapy, jonny, kennedy, david, arquette, jennifer, aniston, cristina, girl, mom, mother, care, pez, dispensers, anemia, contipation, eye, abrasion, puree, high, calorie, protein, iron, zinc, throat, food, diet, soft, forum, community, awareness, red, ribbon, patient, doctor, dermatologist, dermatology, stanford, graphics, blinkies, chat, support, network, fund, raise, fundraiser, youtube, health, home, shop, amazon, boy, whose, skin, fell, off, nurse, camilla, better, place, amazing, race, espanol, international, stem, cell, supplies, bandage, gauze, ointment, antibiotic, donate, benefit, independent, living, aids, surgery, surgeries, anesthesia, cream, nutrition, clinical, photos, photo, pics, pictures, poetry, poem, write, diary, journal, blog, milia, blood, pain, healing, infection, cancer, squamis, cell, carcinoma, esophagus, esophageal, dilitation, dilation, hand, fuse, mitten, scar, tissue, yoga, fingers, graph, therapy, lesion, stricture, malnutrition, dysphagia, dental, genetic, counseling, deformity, corneal, abrasion, mrsa, staph, Staphylococcus, collagen, egyptian, magic, active, manuka, honey, laminin, protein, contractures, alopecia, mucous, membrane, smoothie